Wednesday, 18 March 2009

My fortnightly update!

Well Ryan had his endoscopy and biopsies done on Thurs. Anaesthetic went fairly smoothly although anaesthetist was flapping a bit about the sub-laxation in Ryans neck - *rolls eyes* - other than that though, was pretty straight forward.

Gastro guy came to see us afterwards, results so far show very little inflammation in his throat etc. This means that his body is dealing with the severe acidic reflux he is having but 'this is not necessarily a good thing'.............................WTF???????
Doc also witnessed the reflux happening so as you might imagine - like we did - he'd be put on medication or surgical options might've been discussed again???? Wrong..............we WAIT!!

Got to go back in 4-6 weeks to discuss results and what happens next. Its seems the medical staff doctors involved with Ryans care have the debilitating disorder of not being able to make a bloody decision without discussing it with a thousand other people who know nothing about Ryan!!!

Anyway, tonight we've got a Nutritionist Nurse coming to the house on her way home from work - hows that for service - to explain gastrostomy procedures etc to us. This should be really helpful - we're getting a bit worried that we're gonna be left with the decision regarding going ahead with this for Ryan. He aspirated last week and it was completely terrifying - I couldn't cope with that happening all the time.

Wish us luck for an informative meeting tonight!!
Julie x

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