Is it really almost a week.....

Where does the time go?? Cant believe its been a week since we heard the news. Feel a bit better (if thats even the right word??) about it, well most of the time at least............................I think........................sort of.............
Still got the genetics appt to get through, who knows what that'll bring!!

We went to the ENT appt last Tues, the outcome of all the tests investigating his poor night time breathing.....................wait for it............................raise his head or position him on his side!!! Scans, x-rays, repeated overnight monitoring - just to say that!! He's got a floppy airway and thats the only real solution for him! Haven't told the physio yet - she wants him lying nice and straight and flat in a sleep system - wonder who'll win this fight!! ;-)) Maybe I'll just tell her to contact the ENT consultant and let them argue it out...........I mean they only work in the same building and asking them to communicate with each other is obviously asking waaaaayyy too much!!

On Thurs we met with neuro and gastro doc. Went through all results regarding the reflux issue, next stage for Ryan is to go in for endoscopy and biopsies to check for ulcers and food allergies. Its already been booked for 12th March, wish it was sooner - hate the fact he's in so much pain but there's nothing much we can do.

On a more 'normal note' - its absolutely FREEZING here!! It reached -18 last night in some places - I HATE the snow..........wheelchairs + snow = one of two things - a comedy incident (which really means 'embarrasing'!) or a major accident (normally involving an injury to yourself as you sacrifice your own safety to prevent injury to child!!) Did I already mention I HATE the snow. Its forecast to getting really cold again tonight - oh joy!!!!

Julie x